Words

When I look back on my childhood as a trans, queer, autistic, mentally ill and disabled little boy, I often see the things that were missing. The problem with hindsight, always, is that it can only occur late, very late or far, far too late.

What was overwhelmingly absent, what I desperately needed was WORDS. I lacked the words to articulate my trans, queer, disabled reality. And that makes me angry, even now. Because in many cases those words existed but were kept from me. In other cases, people like me are still working to cobble together words for who and how we are, in order to communicate in a language that wasn’t built with lives like ours in mind.

If you aren’t already nodding your head in familiarity and remembering the times when you couldn’t or can’t articulate who and how you are, then please try to imagine what it’s like. To exist in a world where there is no word you’ve ever heard of for you, where what you are or how you feel or how you experience the world is so unthinkable, so unimaginable, so (it seems) impossible that there are no words for it. You are unspeakable. You exist but… the never-ceasing feeling that maybe you ought not to, maybe what you are is never spoken about because it’s bad. Wrong. Not allowed. Not okay.
Nobody knows that you are how you are. You feel like you should tell someone… and at the same time that you definitely shouldn’t. You don’t have the words for it, anyway. Nobody seems to have the words. You can’t exist.. and yet somehow you do.

I have felt this way about being trans. I also felt this way about being bisexual. And having developmental disabilities. And experiencing mental illness as a child. Even as an adult, I am still not always sure that who I am is “allowed” or “okay”.
From my teens and into the present, I found myself tinkering with words to try to get a handle on who and how I am. To try to communicate it. To try to validate it.

Sometimes that means grasping tight onto existing words like “man” and “love” and “sex” and “independent” and forcefully insisting that my life can validly form part of the meaning of those words. My gender is man, love and sex are part of my relationships with my partners no matter what their gender, I am independent because I see that my own needs are met by ensuring the provision of carers and equipment.

Sometimes I need vocabulary I didn’t have before. Concepts like “trans and cis”, “neurodiversity”, “the social model of disability”, “intersectionality”, “heteronormativity”, “structural oppression”, “sensory overload”, “stims”, “meltdowns” “selective mutism”… become necessary to my continued understanding of myself, my life, the world and my place in it.

As a child, words to describe my own disability were few. Words to describe relationships and feelings other than heteronormative boy-meets-girl were even scarcer. Words to articulate mental distress were not available to me. Words to even begin to understand my gender as a trans little boy? I had none.
Lacking these words did not prevent me from experiencing myself as a disabled and autistic, proto-bisexual, transgender little boy in increasing mental distress.

All it did was make my life more frightening and unpredictable as things happened to me that I could not explain, I had feelings I did not know how to express and I did not know how to get any help or guidance from the adults in my life because I had no words to explain what was wrong.

I scoured fiction and nonfiction books and TV shows for validation, looking for someone, anyone, who was “like me”. I found the occasional gay person or mention of the possibility of same sex relationships. I found a few fictional characters whose mental distress echoed my own (though they never had anything that was canonically acknowledged as mental illness). The fictional wizards, demi-gods, cyborgs, mutants, faeries, changelings, aliens, rebels and rejects of my childhood reading felt more like me than anyone real I ever saw on TV or heard about in school. Erasure of trans and bisexual realities left me feeling alone and alienated. The sparsity of realistic representations of autistic people kept me feeling broken and unreal. I’m scared of over-stating this but also when I look back at my teenage years I mainly see a child who didn’t know how to be because he lacked the words to express himself and no way of knowing that being someone like him (like me) was an okay thing to be.

When adults won’t talk about same sex relationships or LGBQ people or trans people to and around children, this is what it does to LGBT children. When disability is a taboo topic and disabled people are rarely the heroes of their own stories, this is what it does to disabled children. When autism isn’t identified and autistic reality isn’t treated as valid, this is what it does to autistic children.

When children are living in a world of structural oppressions, some of which they are themselves facing, and the adults around them do not acknowledge that this is happening; this is what it does to those children.
Not telling children that LGBT and disabled people exist will not stop them from being LGB or trans or disabled. It will only make things harder for them if they are and harder for their LGBT and disabled peers if they aren’t.

This is a structural problem, built into what we teach in our schools, read in our books, watch on TV, who we hang out with and a million tiny-huge other things as well as what we each say (and don’t say) to the children in our lives. It can’t be fixed with a conversation here and there or a special book or Special Episode. But we have to try.

To be entirely clear:
This isn’t about my parents or my teachers (though it is a bit about Section 28). It’s about the society I grew up in and the resources that were and were not available to me as a child. If you’re reading this as a personal attack, I’m very sorry to have upset you but it really isn’t one. This blogpost describes what it was like to grow up trans and bisexual and disabled in 90s and 00s Britain. I hope it doesn’t describe growing up in 2010’s Britain as well.

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